He’s Wrapped Up Like A Mummy

Even amidst the painful and tiring task of washing and re-dressing all of his wounds - which takes four hours and must be done every other day - Tina and Jonathan laugh often and heartily. Like many other 14-year-old boys, Jonathan Pitre loves sports, dreams of a future as a coach and has a crush on a cute girl at school. But unlike most boys his age, Jonathan suffers from Epidermolysis Bullosa (EB) - a rare disease defined by severe blistering and shearing of the skin that leaves Jonathan in constant pain - the likes of which most would find intolerable.

At first glance, Jonathan Pitre from Russel, Ontario might seem like your average 14-year-old boy. Like many other boys his age, Jonathan dreamed of being a professional athlete; specifically, he wanted to be a pro hockey player.  

Unfortunately, something got in the way of Jonathan’s goal – he was born with Epidermolysis Bullosa (EB), a rare condition that brings his skin a constant intense pain. Butterfly Boy’s Skin Falls Off With The Slightest Touch

 Despite his crippling condition, Jonathan shows an incredible amount of strength and determination. His journey is something that truly must be seen to be appreciated.




Leave a Reply

Your email address will not be published. Required fields are marked *