At first glance, Jonathan Pitre from Russel, Ontario might seem like your average 14-year-old boy. Like many other boys his age, Jonathan dreamed of being a professional athlete; specifically, he wanted to be a pro hockey player.
Unfortunately, something got in the way of Jonathan’s goal – he was born with Epidermolysis Bullosa (EB), a rare condition that brings his skin a constant intense pain. Butterfly Boy’s Skin Falls Off With The Slightest Touch
Despite his crippling condition, Jonathan shows an incredible amount of strength and determination. His journey is something that truly must be seen to be appreciated.